Navigating Life's Detours
Finding the right path for a teen with special needs
Tag: walt disney pavilion
Pushing for family-centered hospital care
Anyone who knows me will tell you I’m passionate about two things in life: My family and the care my son receives at Florida Hospital for Children in Orlando. We spend a great deal of time at the hospital — both inpatient and outpatient… Continue Reading “Pushing for family-centered hospital care”
To hospital or not to hospital?
It’s that time of year, and J.P. appears to be battling something just as cold and flu season arrives. Just before I was supposed to wake up and run Wednesday morning, J.P. could be heard over his monitor, and he just didn’t sound right.… Continue Reading “To hospital or not to hospital?”
Friday Fun: Start your engines
It’s the beginning of the Memorial Day holiday weekend, and from the looks of Interstate 4, many people are already heading out of town. For me, it will be three days of work after taking off so much time for Canine Companions for Independence… Continue Reading “Friday Fun: Start your engines”
Diaper trouble prompts change in plans
Believe it or not, J.P. was back at the hospital Wednesday after going 20 hours without a wet diaper. I’ve learned from my many hospital stays that you can tell nurses about many issues with a child, but nothing seems to be taken as… Continue Reading “Diaper trouble prompts change in plans”
J.P. is home
J.P. was discharged from Florida Hospital for Children on Monday after spending four days there with a gastrointestinal bug. It was the second hospitalization within a week. He was first admitted May 10 which led to surgery to repair his shunt. It all happened… Continue Reading “J.P. is home”
Long day brings welcome news
I think the past two weeks have caught up with me just as I headed back to work Sunday morning. There was the preparation for our team training at Canine Companions for Independence even before that, but the studying and classes and then three… Continue Reading “Long day brings welcome news”
Celebrating canine commencement
There was plenty of laughter and tears at the graduation ceremony for Canine Companions for Independence at SeaWorld on Saturday. Puppies were given awards, and 12 recipients received their dogs in front of a crowd of more than 1,000 people. It was an emotional ceremony… Continue Reading “Celebrating canine commencement”
Getting to know our puppy raiser
It was an exciting Friday as team training at Canine Companions for Independence drew to a close. The day began with a grooming session for Karina in preparation for Saturday’s graduation at SeaWorld. The 11 recipients and their families attended a luncheon with the… Continue Reading “Getting to know our puppy raiser”
Disappointment abounds
I’m disappointed. I’m really disappointed. I’m sad. I’m worried. I’m envious. I’m tired. I’m wondering how what I had hoped would be a bucket-list experience was decimated before my very eyes. At the same time, I’m thankful to the entire staff at Canine Companions… Continue Reading “Disappointment abounds”
Karina visits J.P. before discharge
J.P. tolerated his feeds well and was able to be discharged Wednesday afternoon. It was a really interesting day because Karina was able to spend the day with J.P. in his hospital room. I was very happy with the way she behaved in the… Continue Reading “Karina visits J.P. before discharge”
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Navigating Life's Detours 