Resources

The following are resources that have been useful in our journey to find the right path for J.P.:

Canine Companions for Independence: Matches those with disabilities with highly-trained service dogs.
Carter Centers for Brain Research in Holoprosencephaly: Created to gather, store, organize, analyze and share information about holoprosencephaly and related brain malformations.
Conductive Education: A developmental method to teach everyday life skills to children with motor disabilities in a group environment with one-to-one care.
Families for HoPE: A nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly and related malformations.
Family Advisory Council: A group of parents of children who have been patients at Florida Hospital for Children who advise hospital staff on policies and ways to provide family-centered care. Click here for eligibility requirements. Download application here.
AdventHealth for Children: Pediatric hospital in Orlando that has set the standard for innovation, quality and comprehensive care. The hospital is designed from the ground up to be a child-centric healing environment.
IEP Advocate: Orlando-based advocate dedicated to helping families of children with special needs get services from public schools.
Lighthouse Central Florida: Private, non-profit agency that offers a comprehensive range of services to people living with sight impairment in Orange, Osceola and Seminole counties.
Nathaniel’s Hope: Organization dedicated to providing hope to children with disabilities and their families through special events and respite services.
Northland Church: Non-denominational church in Longwood that provides services to children with special needs during worship services. Click here for more details on Access Ministries.
Aveanna Healthcare: National home healthcare company with offices managed predominantly by clinicians. Aveanna offers in-home healthcare services to patients of all ages, but specializes in pediatrics.