Navigating Life's Detours
Finding the right path for a teen with special needs
Tag: disabilities
Hospital lessons learned
As the parent of a child with special needs, I’ve learned a great deal about how hospitals work, what gets a care team concerned and the things to monitor closely during a hospital admission. But each hospital admission comes with unique circumstances and situations… Continue Reading “Hospital lessons learned”
Insurance provides needed help as J.P. grows
It’s been a busy year, and I’m having a hard time believing it’s already nearing its end. I like to think I thrive in a busy environment, but recently, I’ve frequently felt like I’m struggling just to get the absolutely essential things done. J.P.… Continue Reading “Insurance provides needed help as J.P. grows”
Pushing for family-centered hospital care
Anyone who knows me will tell you I’m passionate about two things in life: My family and the care my son receives at Florida Hospital for Children in Orlando. We spend a great deal of time at the hospital — both inpatient and outpatient… Continue Reading “Pushing for family-centered hospital care”
The J.P. Story: Growing family
Dad’s note: In honor of J.P.’s 12th birthday, I’m writing “The J.P. Story,” which looks back at our journey through birth and now approaching teen-hood. I hope you enjoy. The 10th chapter looks at how our extended family dealt with simultaneous pregnancies. To start at the beginning of… Continue Reading “The J.P. Story: Growing family”
Everything under the sun
J.P., Paige and I have had a busy year, and things don’t seem to be calming down. But several people have asked how things are going and whether I’ve stopped blogging. There are still plenty of stories to tell, and I’m hoping to break… Continue Reading “Everything under the sun”
Birthday wishes to an amazing sister
Christmas was simply the beginning of birthday season in my family. When I was younger, there was a multitude of birthdays just after the new year. My grandfather had a birthday on Jan. 13, followed by my mother on Jan. 15, my sister on… Continue Reading “Birthday wishes to an amazing sister”
Rocks and hard places
The past few months have been a roller coaster when it comes to J.P.’s health. Shortly after Thanksgiving, J.P. started to have issues where he sounds congested and eventually vomits. For Paige and I, it seemed very similar to what happened while we were… Continue Reading “Rocks and hard places”
To mom on her 73rd birthday
My dearest mom, There’s not a day that goes by that I don’t think about you several times. It’s been almost five years since you left us, and I still miss your almost daily phone calls and chance to get together for a meal… Continue Reading “To mom on her 73rd birthday”
Giving thanks
It’s officially the holiday season. I know that because I turned the radio in the car on today, and the Christmas carols were playing. As we sit down to celebrate Thanksgiving, it’s time to reflect on what has happened this year and what I’m… Continue Reading “Giving thanks”
To hospital or not to hospital?
It’s that time of year, and J.P. appears to be battling something just as cold and flu season arrives. Just before I was supposed to wake up and run Wednesday morning, J.P. could be heard over his monitor, and he just didn’t sound right.… Continue Reading “To hospital or not to hospital?”
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Navigating Life's Detours 