Navigating Life's Detours
Finding the right path for a teen with special needs
Tag: holoprosencephaly
Friday Fun: An update from Karina
Several years ago, I spoke to you about my job as J.P.’s service dog. I was practically a puppy at the time, and a fresh graduate from Canine Companions for Independence.
Sleepless nights
J.P. has recently decided to either be fussy at bedtime or to whine in the middle of the night. We still have a monitor in his room, so we get to hear it all.
The J.P. Story: Hospital holidays
It was beginning to look like we may be spending Thanksgiving and Christmas in the hospital in 2018. Unexplained pain and recurrent vomiting had sent us to the hospital in October and again in early November. We were discharged after a five-day stay and returned to the emergency room that night.
The J.P. Story: Problems with pain
J.P. began vomiting in October, and we weren’t sure if it was because of cluster headaches, gastrointestinal issues or a shunt malfunction. I’m not talking about the kind of vomiting when you feel better after it happens. This was vomiting that wouldn’t cease, and eventually led to respiratory distress and a 911 call.
The J.P. Story: Uncharted waters
When J.P. turned 13 years old, it was a milestone and reason to celebrate. While J.P. was considered by most to be a miracle baby, his medical challenges had the doctors warning us that he would likely never become a teenager.
World of change
It was British Prime Minister Benjamin Disraeli who first said that change is inevitable, and I’ve seen plenty of it over the past three years. When I last posted to this blog, I was leaving my life in TV news to reinvent myself as… Continue Reading “World of change”
J.P.’s hospital stay: 1 month later
It’s been one month since J.P. arrived at Florida Hospital for Children by ambulance. It was the week before Thanksgiving, and we prayed we would make it home in time to celebrate Turkey Day with our family. I can’t believe we’re now wondering if… Continue Reading “J.P.’s hospital stay: 1 month later”
Following my heart
From a very young age, I always knew what I wanted to do when I grew up. I was fascinated with television and spent my childhood dreaming about working at the TV station. Saying “the TV station” above is not a mistake, because there… Continue Reading “Following my heart”
Hospital lessons learned
As the parent of a child with special needs, I’ve learned a great deal about how hospitals work, what gets a care team concerned and the things to monitor closely during a hospital admission. But each hospital admission comes with unique circumstances and situations… Continue Reading “Hospital lessons learned”
Hopeful ink
I wondered for a long time if I would get a tattoo. My opinion is that a tattoo should have a very special meaning. I know it’s something you’ll spend the rest of your life with, so I asked myself what in life has… Continue Reading “Hopeful ink”
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Navigating Life's Detours 