Navigating Life's Detours
Finding the right path for a teen with special needs
About Us
My wife, Paige, and I have tried to navigate our way through life with a special-needs child. We’ve searched for the best path to provide J.P. with a high quality of life.
Holoprosencephaly
Holoprosencephaly is a form of cerebral palsy and means the brain didn’t grow forward and divide into hemispheres during pregnancy. The cause is not known.
Resources
It’s important to know where to find help when you have a children with special needs. Click here for some that have been helpful to us.
Friday Fun: An update from Karina
Several years ago, I spoke to you about my job as J.P.’s service dog. I was practically a puppy at the time, and a fresh graduate from Canine Companions for Independence.
Sleepless nights
J.P. has recently decided to either be fussy at bedtime or to whine in the middle of the night. We still have a monitor in his room, so we get to hear it all.
The J.P. Story: Hospital holidays
It was beginning to look like we may be spending Thanksgiving and Christmas in the hospital in 2018. Unexplained pain and recurrent vomiting had sent us to the hospital in October and again in early November. We were discharged after a five-day stay and returned to the emergency room that night.
Blogs I Follow
