My wife, Paige, and I have tried to navigate our way through life with a special-needs child. We’ve searched for the best path to provide J.P. with a high quality of life.
Holoprosencephaly is a form of cerebral palsy and means the brain didn’t grow forward and divide into hemispheres during pregnancy. The cause is not known.
It’s important to know where to find help when you have a children with special needs. Click here for some that have been helpful to us.
Several years ago, I spoke to you about my job as J.P.’s service dog. I was practically a puppy at the time, and a fresh graduate from Canine Companions for Independence.
J.P. has recently decided to either be fussy at bedtime or to whine in the middle of the night. We still have a monitor in his room, so we get to hear it all.
It was beginning to look like we may be spending Thanksgiving and Christmas in the hospital in 2018. Unexplained pain and recurrent vomiting had sent us to the hospital in October and again in early November. We were discharged after a five-day stay and returned to the emergency room that night.
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