Navigating Life's Detours
Finding the right path for a teen with special needs
Tag: holoprosencephaly
Insurance provides needed help as J.P. grows
It’s been a busy year, and I’m having a hard time believing it’s already nearing its end. I like to think I thrive in a busy environment, but recently, I’ve frequently felt like I’m struggling just to get the absolutely essential things done. J.P.… Continue Reading “Insurance provides needed help as J.P. grows”
Pushing for family-centered hospital care
Anyone who knows me will tell you I’m passionate about two things in life: My family and the care my son receives at Florida Hospital for Children in Orlando. We spend a great deal of time at the hospital — both inpatient and outpatient… Continue Reading “Pushing for family-centered hospital care”
Everything under the sun
J.P., Paige and I have had a busy year, and things don’t seem to be calming down. But several people have asked how things are going and whether I’ve stopped blogging. There are still plenty of stories to tell, and I’m hoping to break… Continue Reading “Everything under the sun”
Rocks and hard places
The past few months have been a roller coaster when it comes to J.P.’s health. Shortly after Thanksgiving, J.P. started to have issues where he sounds congested and eventually vomits. For Paige and I, it seemed very similar to what happened while we were… Continue Reading “Rocks and hard places”
To mom on her 73rd birthday
My dearest mom, There’s not a day that goes by that I don’t think about you several times. It’s been almost five years since you left us, and I still miss your almost daily phone calls and chance to get together for a meal… Continue Reading “To mom on her 73rd birthday”
To hospital or not to hospital?
It’s that time of year, and J.P. appears to be battling something just as cold and flu season arrives. Just before I was supposed to wake up and run Wednesday morning, J.P. could be heard over his monitor, and he just didn’t sound right.… Continue Reading “To hospital or not to hospital?”
Finding the new normal
Finding a new normal is actually something quite common in the Cousins’ household. Those of us with children with special needs know things change quite often, and we simply must adjust to do what we can for our young ones. What’s unusual is the… Continue Reading “Finding the new normal”
The J.P. Story: Mixed blessings
Dad’s note: In honor of J.P.’s 12th birthday, I’m writing “The J.P. Story,” which looks back at our journey through birth and now approaching teen-hood. I hope you enjoy. The ninth chapter looks at how we learned of J.P.’s disabilities and the way doctors informed… Continue Reading “The J.P. Story: Mixed blessings”
The talented Mr. Royalty
Earlier this month, I posted about Paige’s back problems and inability to lift J.P. for the past few weeks. Unfortunately, the problem caught us a bit off-guard. We have no lift in the house for J.P., and we have no nursing help or aide… Continue Reading “The talented Mr. Royalty”
The J.P. Story: Early steps
Dad’s note: In honor of J.P.’s 12th birthday, I’m writing “The J.P. Story,” which looks back at our journey through birth and now approaching teen-hood. I hope you enjoy. The eighth chapter looks at how we got started on our journey with J.P. after being… Continue Reading “The J.P. Story: Early steps”
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Navigating Life's Detours 