Navigating Life's Detours
Finding the right path for a teen with special needs
Tag: medical
J.P. is home
J.P. was discharged from Florida Hospital for Children on Monday after spending four days there with a gastrointestinal bug. It was the second hospitalization within a week. He was first admitted May 10 which led to surgery to repair his shunt. It all happened… Continue Reading “J.P. is home”
Long day brings welcome news
I think the past two weeks have caught up with me just as I headed back to work Sunday morning. There was the preparation for our team training at Canine Companions for Independence even before that, but the studying and classes and then three… Continue Reading “Long day brings welcome news”
Celebrating canine commencement
There was plenty of laughter and tears at the graduation ceremony for Canine Companions for Independence at SeaWorld on Saturday. Puppies were given awards, and 12 recipients received their dogs in front of a crowd of more than 1,000 people. It was an emotional ceremony… Continue Reading “Celebrating canine commencement”
Disappointment abounds
I’m disappointed. I’m really disappointed. I’m sad. I’m worried. I’m envious. I’m tired. I’m wondering how what I had hoped would be a bucket-list experience was decimated before my very eyes. At the same time, I’m thankful to the entire staff at Canine Companions… Continue Reading “Disappointment abounds”
J.P. wakes up with smile
J.P. was awake and smiling Tuesday afternoon after surgery to repair his shunt earlier in the day. He had reason to smile after his fellow students at Canine Companions for Independence got together and purchased him a big stuffed dog and card to let… Continue Reading “J.P. wakes up with smile”
Getting back on track
J.P. went to surgery Tuesday morning to repair his shunt, and everyone is hoping that will settle his stomach and allow him to get back to dog training in time for graduation Saturday. Dr. Eric Trumble performed the surgery and said it was the same issue… Continue Reading “Getting back on track”
Making the hospital hospitable
I shared a bit earlier about how all the time we’ve spent in the hospital over the past 11 years turned into almost a second job for me. Florida Hospital for Children is practically a second home, and there are plenty of employees there… Continue Reading “Making the hospital hospitable”
What is holoprosencephaly?
Holoprosencephaly is a form of cerebral palsy. Paige and I learned that J.P. had holoprosencephaly at 23 weeks into our pregnancy during an ultrasound appointment. It was one of those situations where no one wants to tell you anything, but they make phone calls… Continue Reading “What is holoprosencephaly?”
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