Navigating Life's Detours
Finding the right path for a teen with special needs
Tag: florida hospital for children
J.P.’s hospital stay: 1 month later
It’s been one month since J.P. arrived at Florida Hospital for Children by ambulance. It was the week before Thanksgiving, and we prayed we would make it home in time to celebrate Turkey Day with our family. I can’t believe we’re now wondering if… Continue Reading “J.P.’s hospital stay: 1 month later”
Following my heart
From a very young age, I always knew what I wanted to do when I grew up. I was fascinated with television and spent my childhood dreaming about working at the TV station. Saying “the TV station” above is not a mistake, because there… Continue Reading “Following my heart”
Hospital lessons learned
As the parent of a child with special needs, I’ve learned a great deal about how hospitals work, what gets a care team concerned and the things to monitor closely during a hospital admission. But each hospital admission comes with unique circumstances and situations… Continue Reading “Hospital lessons learned”
Pushing for family-centered hospital care
Anyone who knows me will tell you I’m passionate about two things in life: My family and the care my son receives at Florida Hospital for Children in Orlando. We spend a great deal of time at the hospital — both inpatient and outpatient… Continue Reading “Pushing for family-centered hospital care”
Rocks and hard places
The past few months have been a roller coaster when it comes to J.P.’s health. Shortly after Thanksgiving, J.P. started to have issues where he sounds congested and eventually vomits. For Paige and I, it seemed very similar to what happened while we were… Continue Reading “Rocks and hard places”
Giving thanks
It’s officially the holiday season. I know that because I turned the radio in the car on today, and the Christmas carols were playing. As we sit down to celebrate Thanksgiving, it’s time to reflect on what has happened this year and what I’m… Continue Reading “Giving thanks”
To hospital or not to hospital?
It’s that time of year, and J.P. appears to be battling something just as cold and flu season arrives. Just before I was supposed to wake up and run Wednesday morning, J.P. could be heard over his monitor, and he just didn’t sound right.… Continue Reading “To hospital or not to hospital?”
The J.P. Story: Early steps
Dad’s note: In honor of J.P.’s 12th birthday, I’m writing “The J.P. Story,” which looks back at our journey through birth and now approaching teen-hood. I hope you enjoy. The eighth chapter looks at how we got started on our journey with J.P. after being… Continue Reading “The J.P. Story: Early steps”
The J.P. Story: An incredible gift
Dad’s note: In honor of J.P.’s 12th birthday, I’m writing “The J.P. Story,” which looks back at our journey through birth and now approaching teen-hood. I hope you enjoy. The seventh chapter looks at J.P.’s discharge and the incredible ways our church helped us get… Continue Reading “The J.P. Story: An incredible gift”
The J.P. Story: Back to surgery
Dad’s note: In honor of J.P.’s 12th birthday, I’m writing “The J.P. Story,” which looks back at our journey through birth and now approaching teen-hood. I hope you enjoy. The fifth chapter looks at J.P.’s first trip to the operating room. To start at the beginning… Continue Reading “The J.P. Story: Back to surgery”
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Navigating Life's Detours 